Resource Guide for Chromosomal Abnormalities
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Address:
4301 Connecticut Avenue, NW, Suite 404
Washington, DC 20008
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Phone:
1-610-872-7608
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Internet address:
http://www.geneticalliance.org/
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Description of services provided:
The Genetic Alliance offers information on genetic disorders and the impact of the diagnosis on individuals and families. From the main page, you can search conditions, organizations, and resources.
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Address:
11 Keats Court
Coto de Caza, CA 92679
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Phone:
1-888-999-9428
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Internet address:
http://www.genetic.org/
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Description of services provided:
This website provides support services, a newsletter, and information about Klinefelter syndrome and other sex chromosome variations.
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Address:
1275 Mamaroneck Avenue
White Plains, NY 10605
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Internet address:
http://www.marchofdimes.com/
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Description of services provided:
The March of Dimes provides information on pregnancy and birth defects and gives referrals.
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Address:
666 Broadway, 8th floor
New York NY, 10012
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Phone:
1-800-221-4602
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Internet address:
http://www.ndss.org/
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Description of services provided:
The National Down Syndrome Society provides information on genetic disorders and listings of genetic counseling services.
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Address:
233 Canterbury Drive
Wallingford, PA 19086
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Phone:
1-800-336-GENE
1-202-966-5557
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Internet address:
http://www.nsgc.org/
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Description of services provided:
On the National Society of Genetic Counselors website, you can learn more about genetic disorders and find a list of genetic counseling services.
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Address:
2982 South Union St.
Rochester NY, 14624
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Phone:
1-800-716-7638
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Internet address:
http://www.trisomy.org/
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Description of services provided:
This nonprofit volunteer organization is a network of families and professionals who are dedicated to offering support to those affected by Trisomy 18, 13, and related chromosomal disorders. You'll find a resource center with fact sheets, a bookstore, membership information, and upcoming events.
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Address:
231 W. Park Ave.
Sellersville, PA 18960
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Phone:
1-215-453-2117
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Internet address:
http://www.triplo-x.org
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Description of services provided:
Triple X Syndrome provides articles, prenatal diagnosis information, and contacts for those affected by this condition.
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Address:
14450 T.C. Jester
Houston TX, 77014
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Phone:
1-800-365-9944
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Internet address:
http://www.turnersyndrome.org/
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Description of services provided:
The Turner Syndrome Society creates awareness, promotes research, and provides support for all those affected by this condition.
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Address:
P.O. Box 268
Lakewood CA, 90714
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Phone:
1-888-970-0777
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Internet address:
http://www.fivepminus.org
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Description of services provided:
This society encourages and facilitates communication among families affected by 5p syndrome by raising awareness and providing information.
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Address:
5700 Midnight Pass Rd., Suite 6
Sarasota FL 34242
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Phone:
1-800-926-4797
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Internet address:
http://www.pwsausa.org
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Description of services provided:
The Prader-Willi Syndrome Association provides information on this condition, as well as resources, support services, links, and publications.